Needs in ALS
Within the “Needs in ALS” project, neurologists, psychologists, medical ethicists and neuroscientists work in Germany, Sweden and Poland. Patients, their caregivers and physicians are interviewed in semi-structured and qualitative ways. In this prospective longitudinal study, patients from early to late disease stages will be included.
In Germany, it is Helena Aho, Jürgen Keller, Olga Helczyk, Stefanie Böckler and Dr. Sarah Böhm under supervision of the project leader PD Dr. Dr. Dorothée Lulé. The team works in the department of Neurology of University of Ulm managed by the ALS specialist Prof. Dr. Albert Ludolph.
Lea Schuhmacher at the Institute of the History, Philosophy and Ethics of Medicine at the University of Ulm conduct the ethical analysis for the project and Dr. Gisela Badura-Lotter is the coordinator of the ethical team of the project.
Furthermore, members of the German MND-Net (www.mnd-als.de) are part of the NEEDSinALS team, such as Prof. Dr. Susanne Petri and Prof. Dr. Reinhard Dengler and the ALS-Team of the department of Neurology at the University of Hannover, Prof. Dr. Thomas Meyer and his ALS-Team at the Charité Berlin, Prof. Dr. Julian Grosskreutz and the ALS-Team of the department of Neurology at the Universität Jena, Dr. Torsten Grehl and his team at University clinics Bochum and Prof. Dr. Andreas Herrmann and his ALS-Team at the department of Neurology at the University of Dresden.